HIV: Everyone's Disease

As we move closer to wrapping up our 25th year of service to Central Indiana, we have to ask ourselves: Why do we do what we do? Who should care about HIV/AIDS? Who does it affect?

And the answer, readers, is you. And me. Our neighbors and friends. Our families and our community. Right here in Central Indiana, thousands of people are affected by HIV, whether they have it, a friend or family member has it, someone they know or love has died from it, or - like 20% of those who are HIV+ - they have it and don't know it yet.

Check out this re-cap video to hear from some of the folks we featured earlier in the year and to get your mind wandering about how much this issue matters in our city. The individuals we've been talking to throughout the year are an important reminder that HIV truly is everyone's disease.

A Most Mask-tastic Affair

Sure, the Grande Masquerade has always been a masquerade ball. And sure, we all dress to impress every year. But this year, this year it’s all about the masks. Are you a DIY-er? Big spender? King or queen of the outrageous? Classic and simple? Never fear, Grande Masqueraders, we are here to answer all your mask-related questions, give you hundreds of mask ideas (Literally. We got a little excited about it.), and turn mask-hunting/creating/imagining into your newest favorite pastime.

So where do you start? That depends. Are you matching your mask to your outfit or your outfit to your mask? Big life questions here. In either case, we’ve got some ideas for where and how to procure a mask for this, the grandest of Grande Masquerades.  

DIY to the ma(x)sk
Do you have a glue gun, feathers, lace, paper, glitter, puffy paint, fabric, or any combination of these and other craft supplies? Then you, my friend, are on your way DIY mask-making. Since crafting can be a little intimidating for the less crafty types, we got on Pinterest and put together a Mask-spiration board with dozens of tutorials, blogs, and fancy pants masks. We also turned to our gal Martha Stewart, the queen of crafts, for a few additional ideas. Whether you’re planning on pinning a few feathers to a fabric mask cutout (sure to look more fabulous than the five minutes it will take you) or want to layer lace and glitter and crystals and paint and crepe paper and ornate who-knows-whats, DIY masks can be a fun project for a rainy Friday afternoon (hint hint).    

Swipe that card
Not inspired to DIY? That’s okay—we also pinned almost a hundred of the most amazing masks we could find on the interwebs. If you are a human being, we’ve probably pinned something you’ll like. Seriously, there’s a mask for every taste: ornate Venetian, Mardi Gras-style, classic and timeless, animal-inspired, masculine, feminine, devilish, steampunk, British-glam, woodland-themed, feisty, plastic, leather, moss (Yes, we found a mask made from moss. Thank you, Etsy.), one-eyed, two-eyed, no-eyed, full faced, colorful, metallic, and even hilarious (Angry Birds, anyone?). Etsy, the vintage and handmade mecca of the Internet, and Amazon, also a mecca though we’re not sure of what, both feature more mask options than you could imagine and are great resources if you prefer to buy your mask. Prices range from the cost of a latte at Starbucks to a tropical vacay. Want to go local or try it on first? Check out Margie’s Costumes at 38th and Illinois, any of the Party City stores around the city, or those Halloween pop-up stores that set up shop this time of year. And lastly, to take the worry entirely out of your mask selection, let us do the work. When you buy a Grande Masquerade ticket, just check the box to add a mask to your order and we’ll have it ready for you at the event.

Bring out your inner artiste
Okay, okay, so you’re not inspired by Martha, Etsy, or Amazon? We have one more fantastic suggestion for the mask-phobic: paint that mask right on your pretty little face. Check out our Pinterest board (one last time) for some beautiful facepaint/makeup mask ideas. Even something as simple as glitter and black eyeliner can create a mask-like effect. More elaborate masks may require a professional makeup artist or partner in crime to assist with application. You can find costume makeup for sale at any Halloween or costume store, or just get creative with all those M.A.C. colors you bought but never wear. Yeah, we know, they were in in 1995…

We’re here for you and your mask
Still need a listening ear to work through some mask ideas? We’ve got your back. Or face. Whatever. Your friendly blogess is just an email away: kcoon@damien.org. And don’t forget, Grande Masquerade ticket prices go up $25 in just a few short hours (at 5pm!), so snag those tickets online riiiiight now. See you on the 20th!

25 Stories: Bernadette Goes Uptown

In a few short weeks, we’ll be transforming the Indianapolis Downtown Marriott into a grand gala, a masquerade ball to celebrate our 25th year of service to Central Indiana, an evening to outshine all others. The Grande Masquerade is nearly upon us. With this magnificent [read: super fun and fancy] celebration just on the horizon, we thought it’d be fun to look back at the history of our fundraisers. Turns out, The Damien Center has a legacy of hosting rockin’ parties, performances, and other fundraising events to get the word out and raise money.  Tom Alvarez, one of our earliest supporters and fundraisers, sat down with us to talk about “Bernadette Galanti Goes Uptown for The Damien Center,” which was, according to Tom, as fantastic as it sounds.

At the time (late 80s/early 90s), Bernadette Galanti was a well-known performer at the Indiana Repertory Theatre’s Cabaret. (Yes, the IRT had a Cabaret. Yes, we wish they still did.) As a performer who had lived in New York City for some time in the 1980s, Bernadette knew people who had HIV/AIDS and was interested in supporting the cause, so Tom, a former television producer, enlisted her to put on a show for The Damien Center. “It was one night only," Tom says, “and it was a first-class affair all the way around.” As a result of her one-woman show at Broad Ripple’s Vogue Theater, Bernadette became very popular within the gay community and “became our local Liza Minelli,” Tom recalls. This event, he says, was one that helped organize and solidify the gay community “not only around the AIDS issue but by being public and by being out there.”

What did Tom and his fellow organizers learn from this, one of their first fundraising undertakings? Sponsors sponsors sponsors. “Most of the proceeds went toward the expenses,” Tom says, “so what we learned was that you really have to have sponsorships for those kinds of things. This was all kind of virgin territory, not only to us, but to the gay community in general.” And with that, we'd like to thank our extremely generous Grande Masquerade sponsors, especially our Event Presenting Sponsors, McNamara Florist and Marion County Public Health Department.

Now, back to the show. It wasn’t just for fun. Bernadette’s performance was, like other fundraisers for AIDS service organizations at the time, critical to how early activists were able to get the word out about AIDS in places like Indianapolis. “AIDS like in many other places, forced people to come forward and to come out, because it was very clear to us that if we didn’t, it was just going to make things worse,” Tom explains. “If we didn’t step forward to educate our community, the larger community, the epidemic would as quickly or grow more quickly.”

So, people like Tom stepped up and started to organize events like Bernadette’s show. Today, we have events like Grande Masquerade that continue the legacy of FUNdraising, bringing awareness to HIV/AIDS as a cause, and bringing people together in the name of a better community. So whether you’ve been around long enough to remember “Bernadette Galanti Goes Uptown” or are just getting your feet wet in supporting The Damien Center, we thank you and hope you’ll join us for this year’s Grande Masquerade on October 20.

Happy birthday to (all of) us!

Birthdays are good for celebrating, laughing, imbibing, indulging. You know the drill: cake, cocktails, loved ones, favorite places and spaces. But they're also good for looking back. Reflecting. Thinking about how far you've come and what you've been doing that matters to you and your values.

Today, I - Kimberly, your faithful Damien Center blogger and marketing coordinator - have been doing just that as I celebrate my 27th birthday. I've been asking myself, what have I been doing these last few weeks, months, and years that enriches my life and others', that makes my community a better place?

Here at The Damien Center, we've also been celebrating our birthday - all year long. It's our 25th year serving those affected by HIV in Central Indiana, and we're so proud of the legacy we have as Indiana's oldest and largest HIV/AIDS service organization. What we do and how we do it didn't start last year or last month. It started in 1987, when a caring, progressive group of people got together to support a community in crisis.

Birthday reflections, for us, have us looking at who we served, how we served them, and where our (your) funding dollars went. So, what have we been doing that matters to us, our values, and our community? In 2011, we:

• performed 2,315 free HIV tests
• reached 796 youth through prevention education
• served 1,126 clients through Care Coordination
• helped 96 families find housing
• fed 616 clients through our food pantry
• assisted 124 clients in receiving emergency financial assistance

And this is just the beginning. Birthdays are also for looking ahead to the coming year(s), planning for a strong future, setting goals, and living life. So as I and The Damien Center look ahead to our next 25 years, we hope you'll help us celebrate both where we came from and where we're going.

Looking for ways to honor our 25 year legacy? Make a donation, volunteer, walk with us in the 2012 Indiana AIDS Walk, or snag a ticket for swankiest gala in town, the 25th Annual Grande Masquerade.  

25 Stories: Losing a Buddy

A few weeks ago, you read about the beginning of Mark Lee’s journey to becoming an AIDS activist (the part where he visits a gay bar for the first time and realizes he has to take action), but it didn’t stop there. A few years after his unexpected introduction to what AIDS is and how he could help, Mark got involved with The Damien Center’s Buddy Support Program through Howard Warren, an HIV+ pastor at his church. Mark was one of the Center’s original buddies when he joined in 1987.

The program, according to Mark, was designed so that two people would be assigned to each person with HIV to serve as a support system for whatever was needed. “Our job was just to help them,” Mark explains. And help they did—with anything. It was the buddies’ job to help with transitioning to an HIV+ lifestyle, taking medications, advocating at doctor appointments, or even planning for their funerals. “Ideally you wanted to become a friend with them first, but a lot of times people didn’t have time for that,” Mark says. “They were thrown into dealing with hospitals who didn’t want to deal at all with people with AIDS and were being discriminatory, or with family members.”

Mark’s first buddy through the program was Bob, one of the last surviving members of the original group of People with AIDS. Though their relationship got off to a rocky start—Bob was wary of the program and Mark had recently lost a dear friend to AIDS—they ended up becoming close. “He was my best friend,” Mark recalls. Bob was tough, determined to live on in the face of HIV. Though the survival rate at the time was only six months to two years, Bob had already lived three years with the disease when he and Mark met, and he would live for another three after that.

But for Mark, his friendship with Bob became a source of guilt. He would go to Buddy Support Program meetings at The Damien Center each week and feel guilty because his buddy was in good health while others were struggling with ill health, or worse, with the death of their buddy. “I told them one time I felt guilty, because all we did was laugh and have a good time, and not really anything as far as helping him with doctors or anything like that,” Mark explains. “Then someone pointed out—that’s actually how it’s supposed to work. You develop this friendship, this trust between you, so that when he does need you, then you’ve already established that friendship, and he’s able to lean on you, and you can help him out with whatever he needs.” And that’s exactly how it panned out for Mark and Bob. When Bob eventually lost his eyesight and wasn’t as healthy as he had once been, Mark helped him through the last few months of his life.

Today, though the Buddy Support Program no longer exists, The Damien Center offers support to HIV+ individuals in the form of Care Coordination services. Highly trained Care Coordinators work with our clients to connect them with all the resources they need to life healthy lives and move forward each day with dignity. Stable housing, medical care, insurance, nutritional needs, counseling—clients and Care Coordinators work together to determine what the individual needs to be healthy and happy. Losing Bob was painful for Mark, but because of important support mechanisms like the Buddy Support Program and Care Coordination, those living with HIV can find the resources and relationships they need at The Damien Center.

Take a walk with us!

What's better than a stroll through a historic Indianapolis neighborhood on a beautiful fall evening with good friends? Doing all that while supporting the Indiana AIDS Fund, we think! Join our 2012 Indiana AIDS Walk team for a "Walk Around the Block, where we'll walk roughly one-mile through historic Herron Morton Place.

Entertainment, food trucks, and activities along the route plus a wellness fair and awards make this a can't-miss event that supports the Gregory R. Powers Direct Emergency Financial Assistance (DEFA) Fund and benefits The Damien Center's clients. This a family friendly event, so bring your kids, cousins, grandparents, friends, and more - you can even bring your pets and their friends.

By walking with us and raising money through family, friends, co-workers, employers and others, you're helping provide funds for emergency shelter, utilities, food, medicine, transportation and other critical needs of those living with HIV/AIDS.

Here's the schedule:

Saturday, September 29, 2012
3:30 pm - Registration opens at 16th and Alabama Street
3:45pm - Live entertainment
4:30pm - Welcome and awards
5 pm - Step-off at 16th and Alabama

Immediately after the Walk, Greg's Our Place will be hosting a BBQ Party on the patio! The first 200 walkers (21 and up) get in free.

Location: Herron Morton Place

Register at IndianaAIDSwalk.org

25 Stories: Trial by Fire

Steve Everett’s first job at an AIDS service organization was supposed to be temporary. He’d taken an office manager position at Indiana Community AIDS Action Network (ICAAN), then housed in The Damien Center, just until he found his first teaching job. But instead, Steve, who grew up in rural Indiana with little exposure to the HIV/AIDS crisis, became unexpectedly passionate about the cause and has continued to work in the field since he first set foot in The Damien Center in 1991.

But those days, according to Steve, never saw a dull moment. “It was kind of trial by fire in the early days working here,” he says. Because The Damien Center was housed in an archdiocese building with a handful of other HIV-related organizations—Indiana Cares, ICAAN, Indiana Youth Group, Project Outreach, to name a few—the Center became a safe haven both for people infected with HIV and those who served them. That also meant people came from far and wide to seek the HIV/AIDS services offered by The Damien Center.

“There were many, many people that were coming to The Damien Center in the very end stages of the disease. They sometimes would walk in and just collapse,” Steve explains. “It was not uncommon to leave to go to lunch and then come back and there’d be an ambulance parked right at the front door.”

Those in need of care, says Steve, would drive in to the Center from as far Paoli, Indiana; Effingham, Illinois; or Dayton, Ohio because very few places in the Midwest outside of Chicago existed to provide these needed services. “They would hear about this Damien Center and make the trip,” Steve says, “but a lot of times their health was in such bad shape, that they had to go right to the hospital.”

Today, Steve serves as the director of programs for the Indiana Family Health Council, a quasi-federal agency that provides family planning services, testing, and more across Indiana. But he hasn’t forgotten his early experiences working in the field. “Back in the early days, it was by the seat of our pants,” he says. “Everything was kind of ‘let’s see what happens and then we’ll tweak it as we go along.’ Everything was very much a crisis approach.” The approach to prevention and care now, he says, has improved drastically and is “much more formalized.” Through his service in state government, private philanthropy, and nonprofit organizations, Steve has worked tirelessly to continue moving Indiana forward in providing services for those affected by HIV and in preventing the spread of it.

25 Stories: Bullwinkle's and GRID - Learning About AIDS in 1982

When Mark Lee, a young IU Hoosier with a painfully shy disposition, mustered up the courage to sneak into Bullwinkle’s one fateful evening in 1982, he had no idea his world would be turned upside down. Anxious about being carded and uncertain whether or where he belonged on the disco dance floor at one of Bloomington’s mainstay bars for the gay community, Mark turned to a publications rack for comfort and picked up the first thing he could find.

Skimming through an arbitrary publication, only half-focused on its contents, Mark’s eyes fell on an article about GRID (Gay-related immunodeficiency), a disease that would capture his attention for many years to come. Gay-related immunodeficiency, an early term for AIDS, was taking the gay community by storm, but fear was spreading just as quickly.

“No one knew where it was coming from,” Mark recalls. “They just knew that gay men in New York and San Francisco were dying of this horrible disease and that they were dying within six months of being diagnosed.”

For Mark, it was a wake-up call. Besides being his “first real experience in a gay bar or anything in the gay community,” Mark was drawn in by what he could do to keep himself safe in the midst of a national crisis. “I did a lot of reading,” he says. “I read everything I could on it: signs you might be positive, how to take care of yourself, anything.”

According to Mark, he came out just as the gay community was making a major shift. On the one hand, an era of promiscuity, bath houses, and anonymous sex was ending, while AIDS was only just beginning. “People started dying,” Mark says, “and then people started taking notice and taking care of themselves.”

Despite the initial fear and uncertainty, in the 30 years since Mark’s first foray into Bullwinkle’s, he’s become an advocate and activist for HIV/AIDS in too many ways to count. He was one of The Damien Center’s original “buddies,” a role in which he was paired up with HIV+ individuals to build friendships and develop a support system. More on that later. He also went on to work for Indiana Community AIDS Action Network and AIDServe Indiana and continues to support The Damien Center today. Though Bullwinkle’s closed its doors in 2006, the significance of Mark’s work in fighting HIV/AIDS and supporting those affected by it lives on.

My Name is Earl ... Conner.

Earl Conner: retired Episcopalian minister and committed AIDS activist. Not the namesake of The Damien Center—we'll get to that in a minute—but the man behind what has become Indiana's oldest and largest HIV/AIDS service organization. In the mid-1980s, when HIV and AIDS were still murky, scary, concepts, Earl stepped up to fight the spread of this deadly disease in his community. His alarm at the growing AIDS crisis in Indianapolis led him to seek a coordinated community response by uniting existing groups within one facility. With support from Christ Church Cathedral, an Episcopal church, and the Cathedral of Saints Peter & Paul, a Catholic church, Earl established the Damien Center in an empty and forgotten archdiocese building in April of 1987.


Earl's friend Evelyn describes those first few months of planning and opening The Damien Center in this post. Though founded as an inter-faith collaboration, The Damien Center is now a fully independent, non-sectarian, not-for-profit public corporation, and Earl's vision for Indianapolis has, in 25 years, saved thousands of lives and enriched thousands more. The Damien Center is now a leader in HIV prevention, education, awareness, and advocacy. In 2011 alone, we served 1,126 clients through care coordination and administered 2,412 free HIV tests.

So where does The Damien Center's name come from? The Center is named after the Blessed Father Damien, a Belgian Catholic priest famed for his compassionate care for those affected by Hansen's Disease, or leprosy, on the Hawaiian island of Molokai. Fr. Damien battled the religious and societal rejection of those living with the disease, choosing to live with and among them in the Molokai "lepers' colony" from 1873 until his own death from Hansen's Disease in 1889. He was beatified by Pope John Paul II and became a saint in October of 2009.

His compassion and care, along with Earl Conner's vision, live on through the work we now do at The Damien Center.

Testing 123, Testing 123.

We know. Getting tested for HIV doesn't sound like too much fun. Luckily, it's also not too difficult, and thanks to our rapid HIV tests, it's not time-consuming either—you'll have your results within 20 minutes. No poking, no pricking—just a mouth swab and some quality time with one of our trained HIV tester-counselors.

Still sound a little scary? The awesome Teen Damien crew made this hilarious (but informative) video to prove that really, it's not. What it is is something that can help prevent the spread of HIV and STDs in our community.

Check it out and then stop by our testing center for a free and confidential test today.